3rd May 2019, Volume 132 Number 1494

Rajan Ragupathy, Vithya Yogarajan, Chris Luoni

Secondary research using health records and other personal health data (henceforth referred to as health information research) is a valuable tool for tackling New Zealand’s health and social challenges. It…

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Author Information

Rajan Ragupathy, Clinical Trials and Research Pharmacist, Pharmacy, Waikato District Health Board, Hamilton; Vithya Yogarajan, PhD Student and Doctoral Assistant, Department of Computer Science, University of Waikato, Hamilton; Chris Luoni, Medication Safety Pharmacist, Pharmacy, Waikato District Health Board, Hamilton.


The authors would like to thank Jade Sewell, Veronique Gibbons and Jan Goddard from Waikato District Health Board for their invaluable reviews and suggestions to improve the manuscript.


Rajan Ragupathy, Waikato District Health Board, Private Bag 3200 Waikato Mail Centre.

Correspondence Email


Competing Interests



  1. Yogarajan V, Mayo M, Pfahringer B. Privacy Protection for health information research in New Zealand district health boards. NZ Med J 2018 November 9; 131(1485):19–26.
  2. Ragupathy R, Yogarajan V. Applying the Reason Model to enhance health record research in the age of ‘big data’. NZ Med J 2018 July 13; 131(1478):65–67.
  3. Menkes DB, Hill CJ, Horsfall M, Jaye C. Perspectives on access to personal health information in New Zealand/Aotearoa. Anthropology & medicine. 2008 Dec 1; 15(3):199–212.
  4. Cullen R. Culture, identity and information privacy in the age of digital government. Online Information Review. 2009 Jun 19; 33(3):405–21.
  5. New Zealand Law Commission. Privacy concepts and issues. Review of the law of privacy, stage 1. [Online] [Last accessed 29 March 2019 ] Available at: http://www.lawcom.govt.nz/sites/default/files/projectAvailableFormats/NZLC%20SP19.pdf
  6. Durie MH. Ngā Matatini: Diverse Māori Realities. Ministry of Health, Wellington 1995.Available at: http://www.moh.govt.nz/notebook/nbbooks.nsf/0/5C2460657783B86A4C2565D700185D75
  7. Sen A. Identity and violence: The illusion of destiny. Penguin Books India; 2007.
  8. Reid P, Paine SJ, Curtis E, Jones R, Anderson A, Willing E, Harwood M. Achieving health equity in Aotearoa: strengthening responsiveness to Māori in health research. The New Zealand Medical Journal. 2017 Nov 10; 130(1465):96–103.
  9. Hudson M, Milne M, Reynolds P, Russell K, Smith B. Te ara tika. Guidelines for Māori research ethics. A framework for researchers and ethics committee members. 2010:29.
  10. Hudson M, Southey K, Uerata L, Beaton A, Milne M, Russell K, Smith B, Wilcox P, Toki V, Cheung M, Port W. Key informant views on biobanking and genomic research with Māori. N Z Med J 2016 December 16; 129(1447):29–38
  11. Cullen R, Reilly P. Information Privacy and Trust in Government: a citizen-based perspective from New Zealand. Journal of Information Technology & Politics. 2008 Apr 28; 4(3):61–80.
  12. Te Mana Raraunga (Māori Data Sovereignty Network). Principles of Māori Data Sovereignty. [Online] Available at: http://static1.squarespace.com/static/58e9b10f9de4bb8d1fb5ebbc/t/5bda208b4ae237cd89ee16e9/1541021836126/TMR+Ma%CC%84ori+Data+Sovereignty+Principles+Oct+2018.pdf [Last accessed 29 March 2019].
  13. Office of the Privacy Commissioner. Privacy and big data. [Online]. Available at: http://www.privacy.org.nz/assets/Files/Speeches-presentations/2014-09-02-Privacy-and-big-data-MSD-Speech.pdf. Last accessed 29 March 2019. 


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