19th January 2018, Volume 131 Number 1468

Heidi Watson, Rochelle Moss

Every year in New Zealand around 200 adolescents and young adults (AYA) aged 12 to 24 years are told they have cancer. Survival rates for New Zealand AYAs lag behind…

Subscriber content

The full contents of this page is only available to subscribers.

To view this content please login or subscribe

Author Information

Heidi Watson, National Clinical Lead for the AYA Cancer Network Aotearoa;
Rochelle Moss, Programme Coordinator for the AYA Cancer Network Aotearoa.


Heidi Watson, National Clinical Lead for the AYA Cancer Network Aotearoa.

Correspondence Email


Competing Interests



  1. AYA Advisory Group NZ. Report back to cancer treatment advisory group 2013. Wellington: Ministry of Health; 2013.
  2. Shaw PH, Boyiadzis M, Tawbi H, Welsh A, Kemerer A, Davidson NE, et al. Improved clinical trial enrollment in adolescent and young adult (AYA) oncology patients after the establishment of an AYA oncology program uniting pediatric and medical oncology divisions. Cancer 2012; 118(14):3614–3617.
  3. Shaw PH, Hayes-Lattin B, Bleyer A, Johnson R. Improving enrollment in clinical trials for adolescents with cancer. Pediatrics 2014; 133(3):S109–S113.
  4. Albritton K, Bleyer WA. The management of cancer in the older adolescent. Eur J Cancer 2003; 39(18):2584–2599.
  5. Bleyer A, Barr R, Brandon Hayes-Lattin, Thomas D, Ellis C, Anderson B. The distinctive biology of cancer in adolescents and young adults. Nature Reviews Cancer 2008; 8(4):288.
  6. Te Winkel M, Pieters R, Wind E, Bessems J, van DH. Management and treatment of osteonecrosis in children and adolescents with acute lymphoblastic leukemia. Haematologica 2014; 99(3):430–436.
  7. Bleyer A, O’Leary M, Barr R, et al editors. Cancer Epidemiology in Older Adolescents and Young Adults 15 to 29 Years of Age, Including SEER Incidence and Survival: 1975–2000. NIH Pub. No. 06-5767. Bethesda: National Cancer Institute; 2006.
  8. Kondryn HJ, Edmondson CL, Hill J, Eden TO. Treatment non-adherence in teenage and young adult patients with cancer. Lancet Oncology 2011; 12(1):100–108.
  9. Ballantine K, Utley V, Watson H, Sullivan M, Spearing R. The burden of cancer in 25–29 year olds in New Zealand: a case for a wider adolescent and young adult age range? N Z Med J, 2018; 131(1468):15–24.
  10. Kyle RG, Forbat L, Hubbard G. Cancer awareness among adolescents in Britain: A cross-sectional study. BMC Public Health 2012; 12(1).
  11. Whelan J. How frequently do young people with potential cancer symptoms present in primary care? British Journal of General Practice 2011; 61(586):e223–e230.
  12. D’Agostino NM, Penney A, Zebrack B. Providing developmentally appropriate psychosocial care to adolescent and young adult cancer survivors. Cancer 2011; 117(S10):2329–34.
  13. Hullmann SE, Brumley LD, Schwartz LA. Medical and Psychosocial Associates of Nonadherence in Adolescents With Cancer. Journal of Pediatric Oncology Nursing 2015; 32(2):103–113.
  14. Freyer D. Transition of Care for Young Adult Survivors of Childhood and Adolescent Cancer: Rationale and Approaches. J Clin Oncol 2010; 28(32):4810–4818.
  15. Parsons HM, Harlan LC, Lynch C, Hamilton A, Wu XC, Kato I, et al. Impact of Cancer on Work and Education Among Adolescent and Young Adult Cancer Survivors. J Clin Oncol 2012; 30(19):2393–2400.
  16. Muffly LS, Hlubocky FJ, Khan N, Wroblewski K, Breitenbach K, Gomez J, et al. Psychological morbidities in adolescent and young adult blood cancer patients during curative-intent therapy and early survivorship. Cancer 2016; 122(6):954–961.
  17. Adolescent and Young Adult Progress Review Group. Closing the gap: Research and care imperatives for adolescents and young adults with cancer. NIH Publication 06-6067. 2006.
  18. Ballentine K, Sullivan M. Adolescent and young adults cancer incidence and survival in New Zealand 2000–2009. 2013.


The downloadable PDF version of this article is only available to subscribers.

To view this content please login or subscribe