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What Seems to be the Trouble? Stories in Illness and
Healthcare
Trisha Greenhalgh. Radcliffe
Publishing Ltd (Oxford), 2006. ISBN: 184619122X. Contains 128 pages. Price
GBP 19.95
This book shows the importance of descriptive narrative
(storytelling) in healthcare. Professor Greenhalgh finds stories everywhere,
from patients and their carers, within hospital organisations, and even in the
process of systematic review.
With great expertise, and drawing on diverse authorities
ranging from Aristotle to websites, she analyses and then weaves the stories
into a common theme, demonstrating their importance in everyday patient
management, in teaching, in effecting change in healthcare organisations and
even in protecting future research against ever-burgeoning bureaucracy. It is an
undoubted tour-de-force.
Each chapter is heralded by a brief narrative, which is then
analysed and used as a starting point for developing more general concepts. A
simple example discusses the pregnant patient’s fear of taking insulin,
necessary to treat her diabetes, which becomes understandable in the light of
the story of a close relative having died of complications shortly after
starting insulin. No randomised double blind controlled trial will ever identify
these issues, of crucial importance in management.
Such trials may help identify the best insulin regimen, but
evidence-based medicine is only part of good care and is firmly put in its
place. Another example looks at the annual UK National Confidential Enquiry into
pregnancy deaths, which has traditionally been illustrated by case studies told
by doctors and nurses about the people who died.
It was recently decided to remove these as part of a drive
towards more ‘evidence-based’ healthcare. Anecdotes are unscientific
and would introduce the reader to bias. But these stories have great emotional
impact and are the most interesting part of an otherwise dismally dull document.
The teenage girl frozen to death in the grounds of a hospital after being
discharged late in the afternoon following a miscarriage cannot be reduced to
bullet points. Stories embrace complexity and are of much greater impact.
For the more casual reader, some of the book is hard going.
But it is well worth the effort. It’s a rare and brave book that battles
successfully against the overwhelming impression that good medicine means the
exclusive use of evidence-based data, trials, protocols, and audit.
Especially in secondary care, it is so easy to treat the
disease (as defined in our textbook) rather than the sick person defined by
their story, and Professor Greenhalgh corrects the balance. She provides a
rational basis for the importance of anecdote without which medicine is not just
dry but, more importantly, very incomplete. She recognises the importance of
stories at many levels and in ways not obviously evident. She even shows you how
it may help get your application approved through the ethics committee!
My eyes have been opened to new ways of thinking from
reading this book, something I hadn’t expected from its cover. Buy
it!
David Cole
Diabetes Physician Diabetes Centre, Canterbury District Health Board Christchurch |
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